Seeking Compassion, Seeking Change – Net Newsledger

May 5, 2020

Family wants Canada to know government is still not abiding by the Jordan’s Principle tribunal ruling

Of all the pain, watching his children suffering was the worst.

“I had to fight with bureaucrats just to get the simplest things,” Zach Trout says. “I lost days I should have spent with Sanaye and Jacob. I can’t express how painful that was.”

Sanaye’s battle with Batten disease sparked a 13-year fight with federal authorities for basic health services.

Zach and his wife, Veronica, live with their four children on Cross Lake First Nation in northern Manitoba.

Their other two children, Sanaye (born in 1998) and Jacob (born in 2002), died from complications due to Batten disease, a rare and fatal neurological disorder that causes vision loss, seizures, and the loss of cognitive functions.

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