Aug 15, 2018
Title Inuusinni Aqqusaaqtara – My Journey
Introduction
Cancer is a leading cause of death among Inuit living in Canada. The rate is nearly twice as high as the rest of the country. There is a need to provide Inuit with more information about cancer. Since 2012, Pauktuutit Inuit Women of Canada has been increasing Inuit knowledge about cancer and providing tools for cancer patients, cancer survivors, families and health care providers working with Inuit. With financial support from the Public Health Agency of Canada, Pauktuutit initially developed the Kaggutiq Inuit Cancer Glossary. Pauktuutit then partnered with the Canadian Cancer Society though funding from Jaguar Land Rover Canada to continue the dissemination of the glossary and to develop new tools and resources to support patients, cancer survivors, family members and health care professionals. The entire body of work on cancer is called Inuusinni Aqqusaaqtara – My Journey.
Background
Phase 1: Kaggutiq Inuit Cancer Glossary
From 2012 – 2014, Pauktuutit obtained funding through the Public Health Agency of Canada and held focus groups to engage the Inuit community and reach out to community health representatives and health care providers working with Inuit cancer patients. The project included a cancer terminology forum where Inuit medical translators and cancer experts collaborated on region-specific terminology that then contributed to the Inuktitut cancer glossary.
The Kaggutiq Inuit Cancer Glossary is the cancer resource for Inuit regarding cancer terminology and definitions. It is intended to provide Inuit patients and caregivers, as well as health care professionals, plain language information in English along with five dialects of Inuktitut about cancer.
The cancer glossary inspired a strategic partnership that brought together organizations with complementary experience and expertise through recognizing that a lack of commonly understood and used Inuktitut vocabulary was a barrier to communicating effectively about cancer.
Phase 2: Inuit Cancer Project
Pauktuutit is now working in collaboration with the Canadian Cancer Society and the project advisory committee through funding provided by Jaguar Land Rover Canada. This phase focusses on collaboratively developing and providing accurate information and culturally-appropriate resources to support recently diagnosed Inuit cancer patients through their cancer journey, and improving communication among Inuit patients and their medical interpreters, and health care providers. The patient resource, “Inuusinni Aqqusaaqtara” (My Journey) has been successfully launched throughout the regions of Nunangat. Enhanced outreach and dissemination to the cancer healthcare community serving Inuit patients remains a steady focus.
Goals of the Project
The purpose of these resources is to provide information to Inuit recently diagnosed with cancer to better support them throughout their journey and facilitate culturally appropriate engagement with healthcare professionals. A better understanding of cancer can reduce fear and empower Inuit to seek healthcare services sooner and more frequently. Often, early diagnosis and treatment means a better chance of survival. Building knowledge will help to empower not only patients, but their families and friends who want to offer support. Improved health literacy – for patients and healthcare providers – results in fewer misunderstandings and better quality of care.
As a result of this project we hope Inuit will be more knowledgeable and less fearful about cancer so they will be more likely to see their healthcare providers. Ultimately, reducing cancer incidence and mortality rates and improving the quality of life of Inuit living with cancer.
Scope
This is an open call to individuals, firms, or organizations to provide a comprehensive proposal for the development of online self-learning, e-learning modules. E-learning will allow learners to learn in different ways and at their own pace. The modules should be designed to facilitate online and offline learning to accommodate accessibility within northern communities and education before participants leave their communities. The modules should include the best online learning design practices to ensure learners are fully engaged and complement the existing My Journey resources.
Modules could include subjects related to: the cancer project to provide a better understanding of the project’s resources and their implementation; Inuit specific care enablers; information regarding the cancer journey for Inuit patients and their families or caregivers; and a focus on care that is a strengths-based, wholistic approach to healing and re-centers culture as a key element for improving the quality of life of Inuit living with cancer.
Specifications:
In addition, the successful applicants will be required to:
Timeline
The duration of the contract will be from August 29, 2018 – March 31st, 2019.
Pauktuutit’s Roles and Responsibilities
The primary contact at Pauktuutit for this project is Savanah Ashton, Manager of Health (sashton@pauktuuit.ca). Pauktuutit commits to provide the information and materials necessary to complete the work, and will respond to requests for information in a timely fashion.
Pauktuutit will provide a decision within three business days.
Confidentiality, Privacy and Copyright
The successful applicant shall not disclose to any party any confidential information gained or resulting from activities undertaken under this project, nor shall the applicant disclose any information concerning Pauktuutit or their affairs where such information is obtained through this Project.
Pauktuutit and the successful applicant will agree to publicly and mutually acknowledge and accord appropriate credit for each other’s contribution in this project, including any products developed and disseminated as a result. Both parties will come to an agreement on how credit is attributed, depending on the nature and degree of each organization’s contribution.
It is understood that Pauktuutit retains ownership of any and all materials and intellectual property created, designed, or produced as a result of activities undertaken by the successful applicant when awarded this project.
It is understood that the successful applicant will generate original work for this project.
Proposal Instructions
Budget
The proposal must:
Rights of the Organization
Pauktuutit reserves the right to:
NT5