Patient advocate calls for retraction of mystery brain disease report from U.S. medical journal – CBC
Katherine Lanteigne alleges bias, privacy breaches in study led by University Health Network, seeks apology
Jun 19, 2025
An advocate for New Brunswick patients suffering from unusual neurological symptoms is calling for the retraction of a recent scientific report that found no evidence of a mystery brain disease in the province.
Katherine Lanteigne, the former executive director of BloodWatch, is alleging research bias and privacy breaches in the study published last month in the Journal of the American Medical Association, or JAMA Neurology.
Lanteigne said she has written to the University Health Network’s research ethics board in Toronto and to the Horizon Health Network and its MIND Clinic in Moncton. She intends to file formal complaints of research misconduct as well.
She has asked the University Health Network, or UHN, to issue a formal apology for allegedly “flagrantly violating the privacy and dignity of patients.”
