Family trip around world for Canadian kids losing vision has ended. Here’s what happened – GLOBAL

April 26, 2023

When a pair of Canadian parents learned three of their four children will gradually lose their vision due to a rare genetic disease, they were devastated.

Edith Lemay and Sébastien Pelletier went through a grieving process — rife with sadness, anger and a search for a miracle for retinitis pigmentosa, a hereditary condition without a cure. As their new reality sank in and they accepted the diagnosis, the parents came up with a once-in-a-lifetime idea for their family of six.

“That’s their path — let’s make the best out of it,” Lemay said from their Quebec home Tuesday. “That’s when you can go on with your life.”

Lemay and Pelletier decided to take their four children — Mia, 11; Léo, 9; Colin, 7; and Laurent, 5, — on a trip to see the world. Léo, their eldest son, is the only one without the gene.

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