Family distraught as Manitoba maintains it won’t pay for treatment for 30-year-old with degenerative disease – CBC

Province maintains it won’t overrule federal drug agency, asks company to keep offering free coverage

Nov 24, 2025

Tears gathered in Jeremy Bray’s eyes as he absorbed the news that his pleas for Manitoba’s government to cover his life-sustaining treatment hadn’t changed the health minister’s mind.

Bray, 30, who has a degenerative disease that gradually robs him of the ability to move his muscles, met with Health Minister Uzoma Asagwara on Monday after petitioning the NDP government to pay for the drug while he still has some independence.

He can currently move his mouth, parts of his face, one thumb — and that’s about it.

“All I would like is for the province that I’ve lived in my entire life — the province that I love — to help me and provide treatment if it benefits me, which I already know that it does,” Bray told reporters after the meeting.

Read more: https://www.cbc.ca/news/canada/manitoba/jeremy-bray-spinal-muscular-atrophy-meeting-health-minister-refuses-treatment-9.6991230

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